Well I went to see the specialist again this week to go over the last batch of test results. Apparently all normal, so he says the last ANA test was a false positive (2 in a year though?). So the good news that everything says no autoimmune disorder. So the docs diagnosis at this time is Fibromyalgia.
What is Fibromyalgia?
I still have some doubts about it, from what I have read I don’t meet all the requirements, but my mom has it as well and she didn’t have all the markers early on either.
Fibromyalgia is considered a syndrome instead of a disorder or disease. Apparently the joints and muscles are all fine it’s just that my nerves and body are telling me different. So most of the time I am in pain or sore (or both) making life difficult. On top of extreme fatigue, dizziness and shortness of breath. Anxiety can also be a part if it so that would explain a few things.
Another part is sleep. It explains why even if I sleep for 8 hours I’m still exhausted. It prevents you from going to the deep restful sleep (not to mention the waking up every couple of hours)
So the starting treatment is to switch my Zoloft to Savella. Does some of the same things with Serotonin but also turns down the sensitivity to pain and soreness. Of course that means another 2 weeks getting used to it like I did with Zoloft and Lexapro, along with the fun side effects. On top of that I get Ambien to help with the sleeping. Between the two I hope to get some relief. Oh and insurance only covers about half of it leaving me to pay $82 of it, I guess this is because its still new (only approved in 2009) and no generic yet. I’ll have to look into it because thats a bit steep.
Beside the new wonder drugs it’s life as before, Taking it easy and resting often. Continue with the walks and some other form of mild exercise. Funny thing is that even though you feel like crap and not up to exercising you push through it (just don’t over do it) and it actually helps. Total inactivity is the worse thing you can do, or not do I suppose.
Did a little more reading last night and many people with it are sensitive to heat and the symptoms get worse when the temp rises, describes me perfectly. Thankfully its been cool the past couple weeks and I hope that trend continues! Here’s looking forward to a mild summer please 🙂